anxiety, depression, emotions

Unreliable

The not so funny part about having a health issue is that it’s like an onion. The more you look, the deeper the layers go. You start with the obvious layer, the main issue. You have a health issue. The issue is scary. The doctors are scary. The wondering if things will be okay, if you will survive this issue. That is where the layers of onions should end, but they don’t.

Once you peel back that first, obvious layer, you come to the next one. How is this health issue going to change my life? Is this a temporary change or a permanent one. Your life is complex and reliant on who you are right now. Health issues change that.

The next layer covers your partner, the primary person or people in your life. How will this affect them? Will I become a burden? How is my health issue going to change their life? I don’t want to be a burden on the person that has always been there for me. At the same time, I would jump in head first if the roles were reversed. If only that were enough to soften this layer.

Next comes your close friends and family. You don’t expect them to be directly affected too much. You might need help getting some groceries or running an errand. You might need someone to lean on. Someone you trust. You have built a group of people in your life that mean so much to you.

In the beginning, your partner, your close friends, and your family… they will be there for you. Just as you suspect. But the next layer is the part of the onion that puts a tear in your eye. You are not crying at this point, but you wish this recipe of life didn’t need this onion. The people closest to you stop inviting you to events. They get upset with you because you canceled. Again. At first, they stop inviting you to the big trips that take early planning and funding. But it doesn’t end there.

The next layer brings more tears to your eyes. The people in your life start resenting you for your health issue. You have become unreliable and sporadic. You keep disappointing everyone because you just can’t do the thing. But how is it that you can get out and buy groceries if you are so incapacitated? How are you able to do some things but not others?

Over time, the friends and family start to resent you personally. They stop reaching out. They stop calling.

This whole time you are meeting with doctors. You are getting tests performed. Your health is declining. What is the next phase of this health issue? When do you start getting better?

That is when you get to the core of the onion. The people in your life have left. They gave up on you because you changed. You stopped prioritizing them. You stopped being the happy, shiny person you used to be. You look around to the darkness that surrounds. And why? You didn’t change. Your health changed you. That is your sin. That is why you get punished. Having health issues drives people away because they don’t want that touching their lives anymore. They want to go on being shiny, happy people. That is the core of the onion that makes the tears run down your face while you slice away your next steps.

depression, emotions, Song Lyrics

Demons

🎶

When you feel my heat
Look into my eyes
It’s where my demons hide
It’s where my demons hide
Don’t get too close
It’s dark inside
It’s where my demons hide
It’s where my demons hide

They say it’s what you make
I say it’s up to fate
It’s woven in my soul
I need to let you go

depression

Gone

Every day that I wake up, I remind myself that I beat depression again. Every morning is a victory lap of life.

Not everyone gets that chance. For some people, Depression wins.

#fuckdepression #fuckdemons

depression, Motivation

Changes

When I first started doing my one word titles, I tried to use that word as a theme for the post. Over time, though, the one word titles became tiresome. How do I blog about the same thing throughout the years when I limit myself to those rules. I am going back to having multi-word titles.

This may sound like a simple thing, but I was trying to be consistent with this blog. Previous blogs have gone all over the place and failed to keep me engaged. As I push myself to be more engaged with this blog, I need to loosen the rules that I set for myself.

If you are reading this post that is not all that exciting, please know that I appreciate you.

depression, emotions, Motivation

Intelligence

It is not every day that I discover something new about my mental health. After many decades, I am shocked that something new is energizing me. But let’s start at the beginning.

I have been in a funk for a few years now. There were good days and bad days. Drunk days and sober days. Solitary days and day with friends and family. The first part of the story is not going to be anything new. My discovery started with a visit from an old friend. We met up at one of our usual hangouts with some other friends. We did not stay long, maybe two hours at most. Nothing extraordinary happened during this visit. The next day, however, I was in a better mood. My darkness had dimmed a little and I had more motivation.

Now, we all know that people with my disability have good days. I can have high motivation days or high positivity days. Waking up to this feeling was not completely out of the blue.

Fast forward a week. I had another visitor from out of town. We took the ferry over to San Francisco. We ate at the ferry building. I even tried the fish and chips (they were really good). We walked in the sun and stopped whenever I needed a rest. No judgement. No commentary. I would just say something along the lines of this spot is a great place to relax on a sunny day.My visitor also has chronic diseases and knew I was in pain and needed to rest, but did not show sympathy or make remarks about it. We just sat down and kept talking.

The next day I felt amazing. My brain was kicking into overdrive. My motivation spiked. My happiness levels increased. Even though the week between these two visits were full of pain, stumbling, visits to the doctor, and blood tests. I woke up the next day better. More powerful.

Two different visitors. Two different days. Two different experiences. The same result. What was going on? I spent that day pondering this. Were there any similarities to these two visits? They both required me to be outdoors and the weather was beautiful. But I know that being outdoors in the sunlight can help, even if my brain won’t allow me to do it.

That is when it hit me. During both visits, my brain was engaged in stimulating conversations. Not the standard conversations about a movie, a show, or what we did that day. This was not a conversation relaying how our day went. These were not the engaging conversations that I have at work. We talked about life. We talked about the world. We talked about health, disabilities, and emerging treatments. Our conversations included discussing things that required me to be fully present and attentive. I was not half distracted by my phone or the world around me. I was actively engaging in conversations. I was engaging with people that were living their lives and interacting fully. I was having intelligent conversations with people in person. I was living my life outside of work, home, and my health. That is what I discovered. What seemed like basic interactions was in fact medicine that I needed to fight back the depression, the mind fog, everything. That is an amazing discovery. Now let’s see what I can do with that.

depression, emotions

Pain365

Last week was rough for me physically. As I try to wrap my brain around the arthritis eating away at my body, I learn new things every single day. Last week, I found a new kind of pain.. When I would stand up, it would feel like someone hit me with a stun gun in the lower back. The pain would ricochet down one of my legs. Luckily, the pain did not travel up and rarely shot down both legs. Don’t you love discovering new things?

I spent pretty much every minute of every day relying on my cane to keep me upright. I often had to stop moving long enough for the pain to stop. But, you know me. I don’t like to let people know that I am struggling. I don’t want people to know that I am in pain. So I put a smile on my face and convince everyone that the sky is blue and the sun is shining down.

I joined a new work group last autumn. The wastewater engineering group needed more support and the company is trying to hold off on hiring people. Therefore, I was transferred over. As you know, engineers are not really known for being the most socially comfortable people. (I joke!). Last Wednesday, I had an in-person meeting with my work group. After the meeting, one of the engineers mentioned that I looked like I was in a lot of pain. (I mean, it could not have been more obvious, lol). I said I was and laughed. The engineer asked me how I was capable of smiling and acting happy when I am in such pain. And that is an answer that few will understand.

I have a lifetime of experience hiding pain. Whether the pain is mental or physical does not matter. I learned at an early age not to complain. I was taught that sharing your struggles and your pain puts other people in uncomfortable positions and causes them undue stress. So, I hide it as best I can. Unfortunately, I have periods like last week where I could not hide the actual signs of pain, but I could put on a smile and bring snacks for everyone to enjoy.

depression, emotions

Whispers

TRIGGER WARNING: Suicide

There is a whispering in my head tonight. It was a hard day. So many things went wrong. So much bad shit. My brain just wants to shut down and move one.

Don’t fall for that. DO NOT FALL FOR THAT.

Like the song said, I had a bad day. That is it. Nothing more. My brain is whispering otherwise. My brain is convincing me that this world is just not worth my time. I am too precious to be held down by the chaos of this country. This world.

After 40 plus years, I am getting better at realizing when the whispers are in my head. The bad voices. The Whispers. I was struggling today. I just wanted to give up and give up with finality. But you know what? My cat had other plans. She slapped me a few times and forced some cuddling. Not sure how that fits into the personal space thing, but she did. I did. We did. But the whispers are still there. The volume is lower, but the whispers are always there. It just takes one moment. One incident.

There is an old saying that criminals have to be lucky every day. Every time. But the authorities only need to be lucky once. The same thing can be said about the Whispers. I can successfully beat them every day, but it only takes one time for me to fail. Thankfully, I have support. But sometimes, that just isn’t’ enough.

Dear Reader. I am not trying to scare you or beg for attention. If you are reading this, I survived the most recent episode of The Whispering. You are also loved enough to know my inner crazy. You are a friend. A friend indeed.

Do not worry about me today. The Whispers have passed and I am back on Hallmark movies. But that was the most difficult encounter that I have had in awhile.

I love you. I don’t need a reason. I love you. Be good. Be happy. Be loud.

depression

Supportive

We often think that our close friends and our family are automatically out support group. We assume that when push comes to shove, when the cards are down, they will be there for us.  

Let me stop here. You have been duped.  

People love you for what you can do for them. They don’t need you. They don’t want to deal with you when it becomes difficult.  

I live with major depressive disorder. I don’t have a choice. It is there. People in my support circle are great at supporting me, until my illness is inconvenient for them. At that point, I become a burden. An unnecessary burden. 

I am not going to tip toe around people anymore. I am here. This is me. If I am too much, walk away. Don’t fuck with my time and limited mental energy.  

I am exhausted and I don’t think I have a support group anymore. Am I needy for wanting people to understand what my brain and body are going through? 

Supportless in Oakland.   

emotions

Unlocked

I have a familiar. She’s technically a cat. Well, a bratty cat, but still a cat. She loves to be around me and curl up with me. She loves to lightly wrap her tail around my leg to make sure I know that she loves me.

Over the past couple of months, I have allowed Leia to join me on the balcony. She loves the birds and the squirrels, but I watched her every moment. Any time that she seem over stimulated, I would call her name and she would look at me, lay down, and relax.

Yesterday, everything changed. Yesterday, I was distracted by stress and frustration. I did not see her shake her booty and she coiled up to attack. I did not see the bird that flew inches from me. But Leia, she saw that bird. Her instincts took over and she pounced. But, there was no ground for her to land on. She jumped six feet into the air and fell three stories to the garage area.

In the moments following, everything changed. I did not have arthritis. My joint and muscle pains were gone. There was only Leia, hurt, scared, and lost in an unsafe world. I truly believe I could have picked up a car if she was trapped.

I don’t really know what happened next in detail. I screamed my husbands name. I sprinted into the apartment. I found footwear on my way. I ran out of the apartment and down two flights of stairs in two, maybe three seconds. I walked over to her, my heart breaking as she scrambled to get over the wall. She didn’t recognize me.

I stormed over and grabbed her by the scruff of her neck. I yanked her off of the fence and walked toward the stairs. I made it up one flight of stairs before my husband appeared. He took her from me, curled her against his chest, and led us both back to the apartment. In that moment, seeing her safe and in my husbands arms, I cracked. I held myself together as I walked in front of him, unlocking and opening the doors.

Once I sat down on the couch… I broke. My tears filled oceans. My heart broke and healed and broke again. For two days she avoided me. But in the end, we met back together and I fell asleep on the couch with her sleeping on my legs. And the world was better once again.

anxiety, depression

Battles

I have battles going on in my mind and body. Today I want to talk about the one affecting me the most. I have arthritis in my hips. One of the best ways to treat this is to become more active and lose weight. That might be fine and dandy for most people, but my depression doesn’t like to be active. My depression wants me in bed or on the couch. Out of the sun. 

A great way to help reduce the depression in my head is to get outside in the sun. Be active. Be engaging. But the arthritis in my feet and hips makes that more difficult. 

Now for the fun part. There is a liquid that I can consume to help reduce the depression and the pain from the arthritis in the short term. But it makes them both worse in the long term. The wonders of alcohol. 

Would this be a catch-22? A catch-33?